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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« Tae's Writing : Saturday_february_25_2006 | Main | Mon 27 Tae's Writing : Wishlist »

Sunday 26th Feb: His Eye Is on the Sparrow

Its Sunday afternoon and after a an evening at home with the two younger kids I got back to the hospital and gave Sina a break. Discussions with the nurses Dr. Chaplin and Dr Simpcock have been quite positive. They are pleased with her progress although we are still reminded how extensive the surgery has been and that  it will take some time with her recovery...

I sat in the ICU looking at my daughter - bravest girl I know, struggling to beat this condition. The words of the song that she kept singing throughout her illness - "His Eyes are on the Sparrow" kept drifting through my thoughts and put into perspective the situation,  the simplicity of her faith and the position she has taken throughout this ordeal that If "His eye is on the sparrow (Off course...obviously ... duhh ) ..HE IS watching over me..."

Link: His Eye Is on the Sparrow.

I arrived in Tonga 2 weeks ago with a list of things to do before returning for Tae's operation. Instead I got there in time for Cyclone Vaianu. Everything stopped for the cyclone; business closed, people boarded up buildings, everyone is stocking  batteries, torches, candles radios and food supplies. Nothing is normal.

Standing on our verandah watching the whipping rain, bending trees, empty street and the rumble of the storm... it dawned on me how similar our life at this point was to the cyclone. Nothing is normal anymore.... . Jobs are in limbo, Doctors determine our schedules, the family bouncing between NZ and Tonga ... a total departure from any semblance of independence to a total dependence on other people.

Never has our faith been more important to us and Tae has made it so much easier by her determination that God has her purpose "tucked under his arm". Watching Tae struggle today simply to breath and get more comfortable I am reminded of the strains of her singing that even now...  God is watching her, watching us ... and we will get through this storm.

Thank you again for being there for us!

Comments

Quite a story of encouragement. If a 13 year old can have such faith, why can't I? Thank you for trusting Him, Tae!! MaloTaholo mo Sina for allowing us to be part of the journey!! with you in thoughts & prayers Thank you also for the song..it brought tears to my eyes and encouragement to my heart!!

It's truly an uplifting song! Tae you are the inspiration of many projects to come!!!! 'Ofa atu and Blessed Sunday to you!!! Auntie Kava :))

To Taholo & Sina,
I praise God for young Tae's courage and faith. Tae is a blessing to all of us who have been following her. Young Tae has shown to many of us what it takes to have Faith in the Lord. Faith can move mountains and that is exactly what young Tae is doing.
Let me take this opportunity to say "Malo Aupito" to you all Kami family (Mum, Veni, Moni, Taholo, Taina, Pila) for being part of our lives. If you will remember our dear Kotoni, then it's me Kaia, with my daughter Akanesi from Port Moresby, PNG.

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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Papua New Guinea Children of the Pacific Concert