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Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« Fundraising & Visitors | Main | Sunday Morning 5th March 9am - Surgery Again »

Tae's Journal: 4 March

Dear all,
Today was good, the doctor came in & recommended that tomorrow morning I will be in theatre to take out a couple of things, such as the patch on my face covering the skin grafts.
They said they have found cancer in the nodes around my neck, so they will be checking if it has spread since, which means we will have to continue with/to radiotherapy.



I'm enjoying myself well, looking f/ward to a good sleep tomorrow, and
hoping to get home next week. A lot of people have responded to the
website, which is pretty cool.

It's incredible that God is still with me through all of this, and I tend to trust him no matter what.

I'm using a breathing tube at the moment, so it will take some time getting used to (breathing normally) after it is taken out.

There were some flowers brought to me from Hawaii, and that was sweet.
I'd like to thank once again the friends, family, doctors, nurses and staff who have helped me throughout this hard time. I'm looking 4ward to tomorrow and will keep things posted now that Dad reads my stuff!

Well I got to go now   Love Tae

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Comments

Good Morning Tae,
You're probably in Theatre right now. You're in my heart as you go thru today and always!
'Ofa Atu,
Auntie Kava :)

Hi there Miss Molly, how was the new hospital.
I certainly hope you got to ride up and down in that glass elevator just like charlie and the Chocolate Factory. OOOps sorry I mentioned food!
See you soon.

Robyn

dear tae,

Over the years, I read about your battles with this rare disease. I was really happy when I heard of your latest operation results.

Only now I am lost in your last diagnostic..... even though i don't know you at all....but my eyes are filling up with tears just from reading your reaction to the diagnosis...... I know of no person with such bravery and faith with no fear such as yourself.

you are a blessed child and may you have peace with yourself in this troubled times.

my prayers are with you and your family.

Lole

Hi Tae i'm just writing to say hi from my mum, sister,and me.
we always remember you in our prayers and so are the family.
hope you have a splendid life and GOD BLESS.

Ofa atu Tae and Family from,
Peau, Caroline, and'Eseta Funganitao

Deepest condolences goes to the Kami family! May God's love and protection comfort you during this time. We never forget Tae in our prayers as my mother also suffers from cancer. My name is Sisifa Ma'asi, daughter of Salome Kavaliku. When mum heard about the news, she just cried. i asked her why she's crying and she said shes crying tears of joy for Tae because she knows Tae is in a better place now! Tae has been a inspiration to alot of people including myself! I've realised that I take so many things in life for granted but here is a innocent girl who struggles everyday and yet she still accepts it! Seeing her so strong has made mum also feel strond that she can fight the cancer! Tae we all love you and yes it may be sad that your gone but your a angel sent from heaven! God has planned your home for you. Even though we didnt know you, but never did a day go by that we didnt talk about you! You have honestly inspired SO many people to be strong despite what life may throw at them! WE LOVE YOU TAE KAMI! May you rest in eternal peace! =) Love from all the KAVALIKU family in New Zealand & in Tonga! 'Ofa Lahi Atu to all the KAMI family! xoxo

Joseph Daniel Aho

Kolomotua TongaTapu

Oh Lord we thank you for Tae we thank you for all the moral teachings that u have passed through Tae on to evryone that knew her we thank you for the very important theme that Tae wants to bestowe into Our lives WALK ON WALK STRONG we thank you that we know that she is with you LORD i hope that you comforte Sina and Taholo for their great lost these days Lord i ask you to be with them and all of us forever more amen

i just want our prayers to reach out to you......

Proverbs 3:5 6 Trust in the lord with all your heart and lean not on your own understanding in all your ways aknowledge him and he will show you great paths

with much Love and (shareing is) careing
Joseph Aho

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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