Coming Events

November 2008

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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« Wheel Chair Found! | Main | 1 May 2008 Update »

Some Pictures

Kamordylanitae Tolitolisingers_2 Rugbytaeclose_2It is difficult to capture the incredible support Tae has had over the past months in Fiji and Tonga other then to share a few pictures. There are so many pictures but unfortunately we are hampered by the slow Internet connections.  We will have them up soon and linked so you can browse.

  1. Pic1. Kamordy, Tae & Lani
  2. Pic2. The Prison Chaplin, Rev. Viliami Petelo and the Tolitoli prison string band!
  3. Tautahi Rugby Team
  4. Ana, Etuina, Mia and Tae




Anamiaetuinataedidi

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Comments

Appears that Lani had a blast in Tonga :-)) Love to you Tae Si'i. Can you do me a favour? - give Etuina a good slap for me...hehehehe

Ofa atu
L

Dear Tae,
Wonderful news on the chair...I forgot to tell you that I had a yoghurt ice-cream for you the other day...NZ Natural have opened up an outlet here at Yanuca...it's terrible really but what the heck...it was mango ice cream...Ive been looking at all the pictures here and all I can see is joy and love on peoples faces...that's what you have brought to the world and to so many peoples lives. Have a lovely day and I have to go to a meeting now and will try not to pass the ice-cream outlet. XOX :)
Lata

U always bring smiles to our face Tae seeing tat although ur having a hard time through but still you SMILE... thanx for all u have inspired us with... making us hold on and walk on no matter what...awesome pictures....love u so much

in prayers
Pola, Noa ,Malia, Suli, Nane, 'Una, Kelisimi, Felix, MOne, Kipola

Fakafeta'i ai pe ki he 'Eiki 'i he ngaahi tapuaki 'i he funga 'o e faingata'a.

Ko e fa'ahinga kelesi taumama'o ko eni 'a e 'Otua 'oku tau ta'imalie ai.

'Ofa atu and may the grace of our Lord continue to be with you all as you face each day, learning of God's love and mercy.

'Ofalahi atu Litia, Trevor Chris and Emma.

Dear Cousin,

I wish there is a way so that we can share your pain i know everyone of us will be more then happy to take part. You know deep down in our heart we feel it too and more not only because you are in pain now but also knowing that you won't be here with us. Us you say *you will be going home and there is no pain there* God will always with you dear and you'll always in your prayer.
I still remember that movie you showed when i was there before you leave for Fiji *STAR* i will always think of as a STAR. You will forever shinning on us whereever you are. 'Ofa lahi atu ki ho ki'i mata 'ofa.
Kongaika Taufatofua and Melaea Taufatofua
From England and Ireland

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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Papua New Guinea Children of the Pacific Concert