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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 9 May Update - Saturday Update - Afternoon with Spacifix | Main | 12 May Update »

10 May Happy Mothers Day

To all the moms - hope its been a special day. Cannot say enough of the role Sina has taken on as mother and carer for Tae as well as keeping the rest of the family in line.  Sina keeps tabs on Tae's medicines, washes, bathes, moves, and acts as her big sister when needed. There is also the role with Mia (9) and Joy (4) as well as keeping home shipshape. All our Love to you Sina f AND to all the moms who wonder onto this website - a blessed mother's day!

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Comments

Dear Sina:

Happy Mothers Day from us here in Nova Scotia. Your quiet dedication to Tae exemplifies what we think of Mothers. Tae, a person in her own right, is an wonderful witness to your values (and we can give some credit to Taholo as well). You have allowed us the privilege, in a very public way, to share the journey you and your family have been going through. It has been, and continues to be, inspirational.

Reading the last couple of days postings has been both difficult and heart warming. All I can think of saying is "WOW". The small pebble that is Tae has developed strong waves as her message is heard outside of your family.

Happy Mothers Day

Murray

Sina,
Having a great daughters like Tae, Mia and Joy only shows what a fantastic mother you are....
Much love from us all here..
xxxxxxoooooo
Veni, Lanna, Vili& Pepe Sione

Wow...i somehow remember the song we sang yesterday in church after my story for the children..." fai hoku tauhi mo fafanga, talu e fatu mei manava. Mole 'a e nonga he mo'ui tatau he 'aho moe po'uli" Hope that God will richly bless you Sina with more strenths in caring out your role as a mother..'ofa atu to you Tae and hope your day will be much better today..
'Ofa atu to the rest of the family

love and prayers
Pola, Malia, Noa, Nane, Suli, MOne, Kipola, Kelisimi, Felix, 'Una

Dear Sina,

We have all been inspired by this journey of love...that you and Taholo and the girls continue bravely. In our thoughts and prayers always.
Ofa atu
Lata

'Ofalahi atu 'aupito.

Simpsons.

Happy Belated MOther's DAy Sina,

YOU ARE AWESOME!!!

'Ofa lahi Atu,
Your Little Tokoua,
Kava ;)))

Belated Mothers Day wishes to you Sina.
Love and prayers for you and the family.
Love
Tupou

Sina Kami, Bravest Mum I Know,
Belated Mother's Day wishes to you. You are an amazing woman and an incredible mum. If I had a fraction of your grace and strength under pressure I would be indeed blessed.
God bless you.
'ofa atu
Michelle

Happy belated mothers day Sina...hope you had a wonderful day.

'Ofa atu
xox

Happy Mother's Day Sina.

'Ofa Atu.

Belated Happy Mother's Day wishes to you. Thank you for being there for Tae and the rest of your family. Mothers are wonderful and amazing creatures.

Tae, Sina, Taholo and Family - Wish we were with you to share some of your strong walks. You guys have made us all walk much stronger.

'ofa atu

Randy, Konai, Baravi, Batiri, Warren and Keanu.

P.S. Batiri is here with us now and she has been following Tae's website from Auckland.

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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