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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 15 May Update | Main | 17 May 2008 Update »

16 May - Father's Sunday (In Tonga)

With the Tongan community the tradition is 3 special family Sundays in a row starting with the Childrens Sunday (White or May Sunday), Mothers Day and today, Fathers Sunday. We in Tonga get Fathers day twice when you count the 'official' Father's day (or everyday if we are to believe the moms).  Again its the tradtional Sunday lunch and there's another roast pig on the table as well as the 'umu' or food baked underground.  Today we are celebrating here with fathers - Paila (Sina's father), Sifa (Sina's brother), Pila (my older brother) and myself as well as Joe Enoka - Rosa's Father in Samoa and Mark Hobson who should now be back with Heather and the boys.  To all you Dad's around the world -  a wonderful and blessed day!

I've often been asked about how we cope with Tae's situation. Again - I think the answer lies in the prayers of so many and Tae's positive attitude through all this - it helps me as a father and it would not be possible without a mom as energetic as Sina. The last couple of weeks have been particular difficult with the extra care Tae requires now that she cannot move her lower body. My role has changed somewhat from being the cheer leader /encourager,  to now doing the essential  heavy lifting,  moving Tae and just helping where i can. Her perky attitude definitely makes it easier for us and we can only be thankful that she is still here and wanting to make the most of the hours when she feels better.  We are often reminded how many parents, including some we know, have lost a young child early. We are grateful that we still have this kind of time with her even though it gets tough thinking of what she has to put up with and we are thankful that she takes it so well.

Mia (9yrs) and cyclone Joy (4) help keep things in perspective,  reminding me that though this is likely the last Fathers day of any sort with Tae, there will be many more to come.  To every Dad out there - make the most of your time with your children - especially while they are living at home and treasure the time you have together. Every day of the journey is a special one and we don't need cancer to tell us that...

Being a father to Tae is a humbling experience.  Just watching her tonight as she sleeps reminds me how

helpless I have been in this journey and how often I have hoped for a "quick" solution whether medical or a miracle and it has not worked out the way I expected. We have had sought the best possible advice from concerned medical specialists, reached out to so many of you for help to cover the costs and found that even our best efforts have led to the worst case scenarios almost happening each time. Yet in the midst of it all, Tae has remained faithful to her belief that God has a plan for her through this journey. Tae has taught me some real lessons of faith and that  life is short whether we get 15 or 70 years... and that ultimately death itself is not an issue, just a new beginning.  I've also been reminded that fatherhood is a combination of head, heart and faith and the latter so much more.

I'm blessed to have my 3 girls,  and there is no better feeling then being reminded by each of them that somewhere in my seeming ineptness at playing "father" that they still think we've done a wonderful job.... even if its just today - I take it, savour it and thank God for the privilege of being their Dad.

Thank you all for your prayers and for walking with us on this journey...

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Comments

Sina & Taholo, as parenthood becomes more of a reality for us (just 3 months to go), we are more and more in awe of the parents we know, especially those who we are inspired by.

We're still surprised that we've been trusted with this responsibility, and only hope we have learned from parents like you.

Love, Mark & Erin

A belated Happy Father's Day to you. May God continue to watch over your little family and give you the strength to take each day as it comes.

Dear Tae,

father's day have passed and we do hope you had the most blessed day with your fatehr in which will be treasured.... just to send you our love and we still pray that God will bless you with peace always..Sina and Taholo we pray for Gods strength to be upon you for all the duties of being a parent to the girls and especially this time for our dear sister Tae..'ofa atu to you Tae and also to Mia and Joy...

love always with prayers,
Pola, Malia, Nane, Suli, Noa, Kipola, Felix, Mone, Kelisimi, 'Una
Laucala

Belated Happy Fathers Day Uncle Taholo and I am so happy you've all been able to celebrate it together, its been lovely to read through all your inspirational posts and catch up on everything thats happening as I haven't had a chance to, Tae, you're amazing, you really are, I'm so glad your my cousin! Missing you all and praying for you,

'ofa lahi atu,

Lani xx

Lani

Dear Tae,

Your cousin Sione told me about you today. I am his teacher. I am very sorry that you have such a painful journey to travel.

I sympathise with your Mum Sina. I too was a mum with a very sick child. You came to bring love to so many people.

God bless, and you and your family are in my prayers.

Ann

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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