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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 16 May - Father's Sunday (In Tonga) | Main | 21 May - Tae's Journal »

17 May 2008 Update

Belated Happy Birthdays to Uncle Steve in Port Moresby, Papua New Guinea and  Ana Vete - a regular in our household here. Ana's cake was awesome - hope the same in PNG.

Tae again started the morning slowly and rather painfully but improved as the medicine kicked in. We were happy to have Tanya Edwards and daughter Ruby in for a visit before Tae slept again through lunch. Sina and I then continued our hunt for the right kind of seafood pasta (Tae has had an urge for a fettucine seafood pasta with creamy sauce). We finally found the right pasta at a premium price and I realized I had been asking for the wrong kind all last week (I thought I knew my pastas). She loved her late lunch. Appreciated the generosity of Marco and Ana at Luna Rossa restaurant last week in cooking up a special pasta. WE are still glad she wants to eat and will have a shot at anything she feels like eating although she is limited to what she can actually chew/swallow.

Tae asked mid afternoon if I could push her into town to see some shops. It was our first time for the two of us to go into town while the shops were open. We bought stationary for her drawings, a milkshake at Escape Cafe (sitting outside under the umbrellas), books at the Friendly Islands bookshop and then visited the new Digicel shop (the new phone competitor). We then strolled passed the Palace, the waterfront and home again - just in time to meet Foi Ledger and a Digicel team who dropped in to give her a complementary phone. 

I have realized that pushing a wheelchair can be quiet a challenge on our inconsistent Tongan footpaths - Tae nearly slipped right off the chair after a front wheel ground into a soft spot. Also appreciating the challenges other wheelchair users face in Tonga and other Pacific countries.

Amazed at the reaction of so many who would wave or call out to her as we walked into town or just come to hug her and greet her. We stopped at one shop to buy a cap and the shopowner tearfully refused a payment and came out to hug her. We continue to hope that in someway, the awareness around Tae's journey will make it easier for kids facing special challenges here in Tonga and other Pacific countries and that her life inspires people to positive change!

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Comments

yes Taholo, I can very well imagined how hard it is to push the wheelchair on the Tongan Roads:):)(real good exercise for you though...hahaha) it's so overwhelming how everyone are so drawn to Tae..am sure that God is not done with her yet...He's got a purpose in everything that happens in our lives and all we can do is Praise His Name!!!
our love and prayers are always with you, Sina,Joy, MIa and especially Tae...'Ofa lahi atu to you all..
Noke, Lusi and Henry

HI All,

Uncle Steve managed to get T-BONE STEAKS, which I call brontosuarus steaks as they cover the plate, and a few of his closet frineds over for dinner.
He did not have a cake, but asked for sticky date pudding, which he got....

A birthday he enjoyed......I HOPE ????
Thanks for the well wishes....
Much love to you all

Dear Tae,

Seems like your enjoying the cruising around town huh??? well we wish you all happiness dear and still we always remember you in our hearts, thoughts and prayers... 'ofa lahi atu to you Tae..'ofa atu to Mia, Joy, Sina and Taholo..its almost over here 3 weeks before exams and we hope and pray we will get to see you back in Tonga again...

much love and prayers,
Pola, Noa, Malia, Suli, Nane, Kipola, Mone, Felix, Kelisimi, 'Una

Hello Tae, ko au maikolo ee... sorry been a while kai toe fai ha 'eva atu... asili ai mate eku me'alele so no ride 4 now....haha.. hope you are all well and I know you are :) i'll really try my best keu toe eva atu asap.. hopefully tomoro if mah ride is back runnin:D missin yah heaps but saipe ur alwayz in our thoughts n prayers:) take care n see you soon...

ofa atu n God bless cuz:)

Uncle Taholo,
I think your dates are wrong....
Please cheak them.
I am doing the Calendar at school and your dates are not the same as mine...
Love you, Bless you
Viliami in POM

Made me laugh at dad pushing you around Tonga's "smooth as" roads... he he good exercise. I should send Manase over to help out. Hope you having a better day today... enjoy your pasta...making me hungry now.. ofa atu aunty Flo xx

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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