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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 1 May 2008 Update | Main | 4 May Update - Weekend Roundup »

2 May Update

Biblesociety_2For New Pictures Click on this link

Long day today - Tae woke up again quiet uncomfortable and with some pain. She struggled to keep food down.  Fortunately, Lynda (also a doctor) has come in from Papua New Guinea to see her and is keeping tabs on Tae's medication. Its not easy for Tae and she now says how she lacks energy and constantly tired. We set up the recliner in the living room while she was strong enough to sit up so she could host a few visitors. The Bible Society youth (pictured) performed some action songs and shared their journies. We were also blessed with visits from Pastor Peter Tupou and Alan, Sam Vete, Semisi and Grace Fakahau.

Kitekeiahostae

  Pic: The Kitekeiaho clan - they performed a dance to "walk on walk strong"

Pic: Hons. FaneTupouVava'u and Salote Maumautaimi (The King's Nieces)

Roytk_2We heard during the day that the rugby team, Tautahi Gold played "Walk on Walk Strong" before their game against the visiting Samoan Savaii team and each time they scored Tae's song would be played over the stadium sound system. Tautahi won the game!

Ainise & Maliana SeveleAinisetae


Taesam

Tae  praying with Uncle Sam Vete - Sam is still battling Parkinsons and a liver condition

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Comments

Dear Tae:

Please let me know the next time Tautahi plays so I get bet on them winning! There are many things that go into winning, I hold the belief that their win is witness to the positive effect you have had, and continue to have, on all of us.

It is slowly warming up here, so as Carmody gets colder, we get warmer. Temperature is a measure of energy. The people who are watching and praying for you are from around the globe, so the energy for you is even.

Today (our Friday, 16 hours behind yous) is casual day, so again no tie, however yesterday my tie was burgundy with a scene from a victorian masquerade ball on it. So in your spirits think of yourself dancing.

Murray

Hi Guys!

Fakafeta'i fai ma'u ai pe ki he 'Otau 'i he 'ene 'alo'ofa 'oku tau ta'imalie ai.

Ko e ngaahi faingata'a kotoa 'oku tau fou ai 'oku
'ikai ke puli pe fufu mei hono fofonga 'ofa. Pea 'e 'ikai ke holo ai 'a hono langilangi.

Ko ia tau fakamalo mo hiki hono kololia tatau ai pe pe 'oku tau faingamalie pe faingatamaki.

'Ofalahi atu he fononga loloa mo faingata'a 'oku mou fou ai. Kae fakafeta'i ko e fononga 'i he 'ofa mo e tauhi 'a e 'Otua 'oku pule kihe 'univeesi ni.
'Ofaatu e kau lotu mo e lotu ai pe.
Litia, Trevor Chris & Emma

Dear Tae
As always thinking of you and the family...it's lovely to see all the pictures being posted...with love and hugs
Lata

dear Tae,

Always and forever you will always be in our hearts...although we are distances apart. We take part in the fakame here tommorow. wow i bet ur song really encouraged the tautahi as it is to us all...Sorry to hear of your situation now but still we pray that in all we go through let HIS HOLY NAME JeSUS be glorified..May the GOOD LOrd continuously be with you and your family through this hard time... we love you so much and wish you aand your family a blessed fakame

love and prayers
Pola, NOa, Malia, SUli, Nane, 'Una, MOne, Felix, Kelisimi, KIpola
Laucala

hi tae..i finally took the time to go thru this great site!!the Ake family is and wil always be praying for you..i luvv yo uso much...it is not a miracle you are alive tae, for you are the miracle...
ofa atu
lola
^^walk on walk strong^^

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Special Information

Medical History

  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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Papua New Guinea Children of the Pacific Concert