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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 4 May Update - Weekend Roundup | Main | 8 May - Tae's Journal »

6 May Update

Monday morning - Tae insisted on going to the airport to see Aunty Lynda off. I also decided to make a quick trip to the office in Fiji after Tae insisted she would wait for me to get back. We are only just beginning to realize the extra challenges of dealing with the added condition of Tae not able to walk and what it means to transport a wheelchair around and carry and move her into positions. Tae started apologizing to Sina for becoming an extra burden and had to be reassured that we are just happy to have her up and smiling and ready to face another day.

I called home earlier and she is now on a catheter - something she dreaded before but now comments how much easier it makes things for her. Tae asked me to let you all know she is doing well - apart from the rain thats keeping her from her afternoon wheelchair ride. She  really appreciates the prayer and support!

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Comments

'Ofalahi atu mo e lotu ai pe.

Tia, Trevor, Chris & Emma.

Dear Tae,

well it is raining here at Yanuca...and there is a definite chill in the air...the season is changing and it has been a slow one this year...I hope you are feeling a little better...love and hugs
Lata
ps the sun will probably come out and a beautiful blue sky

hey Tae and family...agan your story continues to be an inspiration to many.......

u are a tru reflection of God's character.....

stil and always in prayer,
Nesi :@):@):@)

Dear Tae:

Today (May 6) one of our newspapers is printed on pink paper (again your favourite colour) to raise awareness and support for research and education about breast cancer. In support of that initiative, and of you, my tie is red with splotches of pink in it.

My Father, in the last couple of months of his life, needed a lot of support from my Mother. When we visited, Katherine was a BIG help to my Mother. My Father was thankful for the assistance given to him, but was worried about being a burden. Katherine's response was "It is not a burden, but a privilege".

Keep on smiling!

Murray

'Ofa atu ma'u ai pe Tae Jr pea malo ma'u ai pe e kataki & kitaki. ['Ofa atu Sina & Taholo - fakavave pe ki Tonga Uncle! :-))] Our love to the girls always.

With prayers
Sela, Tupou & Lepeka

hello Tae,

'ofa lahi atu ka koe...u still and will always be in our hearts, thoughts and prayers...last night we were playing your song " walk on walk strong" and shared the song with some of our friends here on campus...thanx alot for that inspiring life that you havae shared with us

'ofa atu ka Sina, Taholo Joy and Mia and to you Tae, hope God will still grant more miracles and blessings in your life each new day

much love and prayers,
Pola, Noa, Malia, Nane, Suli, 'Una, Felix, MOne, Kelisimi, KIpola
Laucala

Hi Little One,

'Ofa Lahi ATu,
Auntie Kava ;)))

Hi Sweetie,
If having to carry you everywhere meant more time with you, we would never out you down...
Take Care and we love you......ALWAYS...
XXXXXXXOOOOOOOOOOO
Aunty Lanna, Uncle Steve, Vili & Sione

I mean , we would never PUT you down....
Sorry, tears are blurring my vision....
xxxxxxoooooo

Hey Sis,

Good to hear your still going strong!Lo oh dear, I kow catheters are not fun at all i forgot to tell you a funny story about that...lol next time? We're all good , just stopping by to say thanks for all the support, it was good talking to you on the phone, you keep up your positivity, your such a great example. Mum told me how Joy took a liking to your socks, hope your managing to keep your feet warm . Big hugs to Mia and Joy and lov to everyone,

'Ofa Lahi Atu,

Lani xx

Hi special girl,

Fakafiefia he kei fanongo oku ke kei moui. Tae ko ho'o ngaahi tohi mo e talaloto oku hoko ko e fakalotolahi kiate au mo hoku kii famili. Fakafeta'i ki he 'Eiki hono 'omai ko e ki hotau famili, ke ke hoko ko e maama 'oku ulo he ngaahi to'utangata. Neongo si'o faingata'a ka e fakafeta'i he 'oku ke sio fakamama'u ki ho pale 'amalani 'i loto hevani.

'oku mau 'ofa lahi atu kiate koe. 'ofa atu kia Taholo, sina mo e fanau hono katoa.

nofo a tae

'ofa lahi mo e lotu meia

Meleane & Soni Siketi mei Seaside, CA.

Hi Tae
'Oku mau 'ofa lahi atu kiate koe pea 'oku mau lotu atu ma'a ha fakanonga mo ha fakafiemalie.
'Ofa atu
'Ikani & Haileni Kids
Suva Fiji

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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