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The Support Team

Quotes

  • Tae on her Condition
    before the December Surgery on the Inverted papilloma:
    “...I don't really care how it is, but in the doctor's room, I felt that God was, and is with me and will be with me no matter what, and that if so, than let His will be done, he still has my purpose tucked in his arm safely”

    Summarizing 5 surgeries in 12 months
    “I would also describe the year (2005) as a blessing and a challenge, but I'm up for it. Time has brought each of us together; faith has done the impossible, support has shaped me, love has given me all the things I asked for, Hope…makes me stronger”

Art

  • Taholo

« 2 July - Tae's prayer | Main | 3 July - Thank you! »

3 July - From little sis. 'Amelia (Mia) .. on her birthday

Hi everyone...It's me Mia...  I asked my mum to help me put this up on Tae's website.

 Kidsbday Yesterday was my 10th Birthday. Tae got on her wheelchair after spending a day in bed, and joined us in the living room for the blessing and cake. I knew she was struggling to sit up but she managed to sit for a while. She wrote me a beautiful card and when it was time for my birthday cake I asked Tae to help me blow the candles. She found it hard to blow out the candles so I helped her, we were all in tears but I was glad that Tae was there for my 10th birthday. Tae said it is our last birthday together and to celebrate every birthday even though she is not there but she will be watching me from heaven. She wrote me this beautiful card and I want to share it with you all.

 ‘ofa atu

Mia Kami

 

 Happy 10th Birthday Sister! J  From : Your Big Sister, Tae

 Phllipians 4:13 For I can do all things thru Christs Who Strengthens Me!

 Dear Mia,

Wishing you a Wonderful 10th Birthday!

You’ve all grown up now, and on the way to becoming a young woman (well… not that soon. Lol, but you get the point.:-)

You’re growing up, Mia.. and I’m so proud to have you as my sister.

Mia, we’ve been through a lot together.. and I know that there have been many times when it wasn’t easy for you. I know it’s  been tough, and yet here we are today! We made it through. Together.

Miataecake I thank God for having such a strong and understanding sister like you, and Mia..even though there were times you didn’t feel like you had done much – but Mia, you have done a lot. And you are truly special. I know God has BIG plans for your life and I know that whatever you have set for the future, God is with you all the way. Just keep trusting and relying on Him, Mia

You’re a wonderful, beautiful, talented girl… and if anything may ever happen to me, just know that I have always been proud of you.. and I’ll be watching you all from Heaven. 

Mia.. Celebrate “Every Birthday” for US.

Love always and forever!   xox Your Big Sis, Tae

PS. Hope you get your ipod oneday! (let’s keep praying!) - maybe when you get older :-)

 

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Comments

Hi Mia
thanks for sharing your birthday with us that weren't there with you on your special day.It is so beautiful...and the card from Tae,wow!!!so moving.I'm in tears right now watching you 2 together...there won't be any birthday like your 10th,right????Love you dearest,look after Tae and Joy...as well as on your Mum....
To you Tae,
we love you and always will be...looking at you on the photo is very hard......well,there is nothing more to say,just want you to know that we all love you.Thanks for everything!!!!
'Ofa lahi mo e lotu,Kaunga lahi,Valeti,Sione,Mahe,Vili mo 'Isi,Vai &Tua.

HAPPY B'LATED B'DAY MIA....AND YEAH THANKS FOR SHARING TAE'S GREETING CARDS.......IT IS SO BEAUTIFUL AND IT TOUCHES MAH HEART.....I CAN TELL THAT MAYBE THIS IS THE HAPPIEST BIRTHDAY THAT YOU EVER REMEMBER IN URE LIFE....SO 'OFA LAHI ATU KIA TAE MO KOE E....FEFE HAKE A JOY..'OFA ATU KIAI E....


WE LOVE YOU ALL

Happy belated b'day to you Mia, happy to see that u had a good time with your big sister on your b'day.

Tae, love u too little angel and u a still looking gorgeous.

'ofa lahi atu e.

Bula Mia,
Happy belated bithday to you dear one. What a blessing to have Tae as your big sis. O4 a2 kiate koe and be a good girl like Tae ee!! Be also a good big sister to Joy (for Tae too!)

Happy belated bithday Mia from all of us the villa crew....u 'r very lucky to have Tae as u'r big sister..'ofa lahi 'atu..

Happy belated birthday Mia!! I'm sure you're day was wonderful and had a more special meaning than any other birthday you've had :-) Tae is lucky to have such a supportive and loving little sister like you and I'm sure you feel the same way with Tae and Joy of course. You have a beautiful voice Mia, I hope you continue to sing even though Tae might not be here in future to sing with you, but that you continue to share you lovely voice. May god continue to bless and guide you through your journey dear...with lots of love, Lute xox

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Medical History

  • May 2008
    We brought Tae to Tonga in April after the cancer reached her spine. Since then she is no longer able to walk and despite the slow deterioration of body function still continues to get around with a wheelchair and meet the many visitors who come to see her.
  • 2008
    Jan 2008 - We move to Fiji. Tae has had a persistent cough. The day before registering her in her new school an Xray reveals cancer in both lungs. Tae insists on no further treatment. A quick trip to Auckland confirms cancer in the lungs and in the liver. Cancer is now considered terminal Nov 2007 - Tae had major surgery to remove the Inverted Papilloma Tumour and insert a Titanium implant around her left eye to replace the tumour affected bone. We are advised that she will now have to wait at least 18 months to see if the tumour will grow back before any reconstruction can be undertaken.
  • Oct 2007 Update
    • 2007 - 4 visits to New Zealand for check ups and reactive infections • Planning begins by Surgeon Ninian Pickett on reconstruction of Tae’s face. • 2007 September: Face swells up with an infection – Inverted Papilloma is identified – surgery planned for November 2007 to remove tumour from area around left eye - reconstruction delayed
  • 2004
    Nov - Constant nose bleed
    Dec - Operation in Vaiola Hospital to remove polyp growth in nose. Bleeding does not stop and leads to further hospitalization
    2005
    Feb - Tae is operated on left sinuses through upper jaw to remove tumour – inverted Papilloma This was funded by the Tongan Government via NZ Aid. Tumour is Benign.=
    July - Tumour has regrown and protruding through left nostril. Operation in Tonga through incision down the left side of nose to remove Inverted Papilloma done visiting ENT team from Melbourne, Australia
    Sept - Operation in NZ on sinuses on right side of face to remove inverted Papilloma
    Dec - Operation in NZ on sinuses on both left and right side to remove inverted Papilloma
    2006
    Jan / Feb - Cancer confirmed and extensive surgery and radiotherapy is recommended

    Feb 23 - 17 hour operation to remove cheekbones, upperjaw and all related tissues with reconstruction of face. Dr John Chaplin, Dr. Nick McIvor, Dr. Paul Simcock, Dr. Mark Izzard, Dr Ian Chapman and the medical team.

    March 13th - 11 hour operation to repair flap, remove nodes on neck and skin grafts

    May 1st - June 9th: 30 sessions of radiotherapy spread over 6 weeks at Auckland Hospital - this has included several days in hospital...

    August 9th: Major surgery expected to remove reconstruction. Most of the reconstructed bone and tissue found to be in good health despite removal of dead bone.

    August 15th - WOW - tests come back and Tae is tumour free - cancer in remission.

    Back to Tonga to let the wound heal and to allow for growth and recovery

    December 06 Scans show still in remission and tumour free. Surgery to repair damage to face now set for April 2007

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